芯荟，你一定会挨过这一关！

我一直都想让我的部落开开心心的，好让大家相信世界美好，可是，我今天要破例……

表姐的女儿芯荟在出世的时候，我们在黄姚。收到表姐的短讯，我们都开心得很。回来后各自买了礼物去看看我们可爱的表侄女。她有一种倔强调皮的表情，特别讨人爱。

出世后五十多天，竟然突然间因严重痉挛抽搐而入院。南华医院的儿童专科尝试了一天，说找不倒病因，提议表姐把女儿送去槟城中央医院，因为全马只有三位儿童脑科专科医生，而北马就只有一位。到了中央医院，医生折腾了好久，依然找不出病因。

我第一次到医院看她的时候，她还在ICU。她痉挛得太严重，麻醉药药量得去到她自己无法呼吸方能阻止她痉挛。结果她身上有氧气管、食管、以及各种各样我们叫不出名字的仪器。瘦小的她在小孩儿ICU病床上显得那么脆弱，小手都被针管刺得肿了，再没地方插，结果插在脚底。心疼死了。我什么都不能做，只会偷偷的擦眼泪。

后来辗转听说她渐渐复原（但当时还不知道病因），我再去看她的时候已经在普通病房了。好转了，就只是还得以胶管喂食。大家以为一切好转，但她终究还是再次进了ICU。那时候，听说医生已经宣布证实她的脑在痉挛时因缺氧而损伤了。

今天，放工回家，听爸爸说医生终于公布了病因。爸转述，说她患上的是基因病，体内缺少一种分解蛋白质enzyme。据说她这病，全世界证实的病例只有50宗，在亚洲只有两宗，第一宗在香港，第二宗就是芯荟了。我刚刚在网络上略微找了找，我猜应该就是Trifunctional protein deficiency吧？（明天才能找杰问个清楚）

西医的历史毕竟很短，医生已经束手无策的事，我相信世界上各地民间必定还有许多秘方。有谁曾经听说过这种病情、或知道有什么秘方、或有任何关于此类病情的朋友们，是不是可以在留言处给我一些资料？

Extraordinary-Close-Cousins

Wei and Yuan have blogged about "My Beloved Cousins" and "I Love My Cousins", and now it's my turn.

I have been very busy recently so even though I wanted to blog about our "Mother's Day" celebration (but I think we all have more fun than the mums), I kept dragging it and now I'm not in the mood anymore.

I wanted to make a video or slideshow or something special for all the photos that we took on 9th May 2009 (our Mother's Day celebration) but until now I don't have all the photos with me yet so I decided to skip.

But still, I have to tell the whole world, how lucky I am to be extraordinary close with my cousins. We did not physically grow up together (and I'm way too old to 'grow up' together with anyone of them) but we have this special bonding that whenever we are together, there's no gap between us. We hang out with our cousins a lot (Sara, Steven, Sonia, sorry, you are too far away ;p), shopping, movies, food...... We share our latest projects, talk about our dreams......Sometimes we day dreaming together, share our 'life experience'......

And most important of all, we always have FUN together!

(from left, me, Wei Wei, Amelia, Clifford, Brendon, Christopher, Jia En, Harry, Katherine)

missing from this picture: Charles (when everyone run to the camera, he run towards E&O Hotel), Sara & Steven & Sonia (at U.S. now), Matthew (too young, his parents wo't allow him to join us for the crazy outdoor photoshoot)

I'm Spirit and A Dreamer

You Are Spirit

You are resilient, hopeful, and inspiring. You have a lot of emotional, physical, and mental energy. You nurture and nourish yourself. You know that you need fulfillment and downtime if you want to be your best. You stay present in every moment. You don't allow yourself to be distracted or flustered. You appreciate the life you have been given. You embrace all that is beautiful in the world.

Are You Mind, Body, or Spirit?

You Are a Dreamer

You are primarily concerned with possibilities. You tend to be a fanciful person. All of the world's opportunities sometimes overwhelm you. You are obsessed with ideas and tend to be a big thinker. Theories interest you greatly. You crave intellectual stimulation. You are drawn to a philosophical way of life.

Are You a Dreamer or a Doer?

我的风清扬

在金庸所有的人物当中，我最向往的，要数风清扬了。那是一种怎样的良师，让人跳开世俗拘束，发挥自己一切潜能！那是比伯乐更让千里马期待的人物！

风清扬行云流水、随意所之。他虽然不如令狐冲那么随意潇洒、跳脱不羁、洒脱豁达（年轻时或许和令狐冲没什么两样），然而，正因为他的教诲，让令狐冲终于正视自己的本性，开了窍，给自己找了一个自我肯定的理由。两人一老一少性情相投，在短短一阵的相处当中，成了真正的莫逆之交。

从小，我就深信总有一天我会碰见一位风清扬一样的人物，清逸的、飞扬的（而我总是希望自己可以像令狐冲一样成为真正绝顶人物）。我毕竟还是碰上了。

我找到一个愿意教我独孤九剑的高人，相信自己的美好人生会变得更美好。

你呢？

What Does My Home Say About Me?

I hate myself for addicted to blogthings, really!

Your Home Says That You Feel Unsettled and Free

You come across as very intellectual. People take your wisdom seriously. Your hygiene is passable, but you may be hiding some dirty secrets. You are a very domestic person. You enjoy decorating, cooking, and making things homey. You are a very nurturing person. You find meaning in taking care of others. You don't feel settled in your life yet. You are scrambling to figure things out. You are a very self sufficient person. You can get along well without much help. Your friends see you as accommodating, peaceful, and forgiving.

What Does Your Home Say About You?

I'm Free Spirit too? Just Like Chek Ling??

You Are Carefree

You are always brimming with excitement and possibilities. You love to experiment and learn. You like to go wherever life takes you. You have no rules or routine. You are a true free spirit. You do whatever works. If what works changes, you'll change too. You don't value structure or order much in your life. It kills the spontaneity.

Are You Careful, Conscientious, or Carefree?

金色的我(^^)

Your Power Color Is Gold

At Your Highest: You are engrossed in passions that mentally stimulate you. At Your Lowest: You seek thrills and neglect what's important in your life. In Love: You see dating as adventure and approach it with an open attitude. How You're Attractive: Your passion for life makes others passionate about you. Your Eternal Question: "Am I Having Fun?"

What's Your Power Color?

九周年纪念

很多时候，我们以为会是短暂的事，一转眼，仿佛已是永恒。
这是我毕业后的第一份工作，原以为做做一两年便走，但我胸无大志，一不为钱，二不为前途，就是贪恋这儿简单的人际关系，以及同事间紧密的情谊。一晃，也就九年了。
今年唯一遗憾的是，这九年来一起陪我庆祝“周年纪念日”的朋友都在今年离开了。我再不能放肆的从办公室的这一边向着另一边大喊“happy aniversary!”

Addicted Again

Sometimes I really cannot 'tahan' myself, being hopelessly addicted to mindless activities such as Blogthings, Youtube and Facebook. I am supposed to work on a presentation now, but when I'm doing some research online, I "accidentally" clicked on Facebook, then ended up in Youtube and Blogthings. Sigh..... Wish I have better self-control......

You Are Excited

You are vibrant and lively. You bring passion to everything that you do. You are very animated and energetic. People find you dazzling and charming. Beyond being happy, you are optimistic and enthusiastic. There's so much life to live, and you're eager to experience so much!

What Kind of Happy Are You?

You Are Very Happy

Your life is totally together, and you enjoy every day. And you don't need a quiz to tell you that! You know how to find pleasure in the little things... And even when life isn't so great, you have a good sense of perspective.

How Happy Are You, Really?

享受雨天

我总是庆幸当时坚持留住屋前那一小片绿茵。
雨天，泡一杯热腾腾香喷喷的咖啡，坐在缓缓转动的风扇底下，凉风习习的。抬头便是云雾围绕的Tokun山。
拿一本心爱的书，甚至是把手提电脑搬到外头工作。一边听雨，一边喝着咖啡，一边沉浸在自己的世界里头……
快乐，有时候就是这么简单。